About Us

Deb Discenza gave birth to her daughter at 30 weeks gestation in 2003. From day one she was thrust into advocating and never looked back.  Whether it was her starting the award-winning Preemie Magazine in 2005 or co-writing The Preemie Parent’s Survival Guide to the NICU and launching PreemieWorld, she saw a huge void in parent education in and out of the NICU especially in underserved communities.  In 2020 she Co-Founded the Alliance for Black NICU Families, a non-profit providing racial and health equity in the form of a free wearable breast pump.  In 2023 she founded and is the Executive Director of PreemieWorld Foundation, Inc., providing equitable access to patient education in the form of like-minded books and long term outcomes data for premature infants into the geriatric years. Also in 2023 she founded and is the Executive Director of the Books for Healing Partnership, Inc. going no where no one else can with patient education in the form of a children’s story to be used in all forms of healthcare.  When not doing all of that, Deb serves or has served on numerous boards and committees including:

• International Neonatal Consortium
• NICHD Neonatal Research Network’ Community Engagement Board
• National Coalition for Infant Health
• NICU Parent Network
• International Children’s Advisory Network
• Kindred 360 
• The Skylar Project

A former children’s librarian, Jenny has a background in library science as well as a background in security services for hospitals and public safety. Today, Jenny is the co-founder & Vice President of PreemieWorld Foundation, Inc. and Operations Manager for The Books for Healing Partnership.

As a widowed single mother of two boys, Jenny's personal journey is deeply intertwined with her professional endeavors. Her youngest son, Joshua, was born a 26-week micro-preemie, spending 129 days in the neonatal intensive care unit (NICU) and continues to navigate the challenges associated with prematurity years later.

Jenny is dedicated to raising awareness about prematurity, advocating for health equity, and championing underserved communities. Her insights on grief and widowhood are shared through her blog, "A Warrior’s Battle," on Facebook, while her experiences in the NICU with Joshua are chronicled in her blog posts titled "The Year of the Dragon."

In addition to her blogging, Jenny is a published author and publisher in various parenting and special needs parenting magazines. Recently, she authored her first children's book, designed specifically for the NICU, titled It’s a Kangaroo Thing. This story promotes the practice of Kangaroo Care, fosters bonding in the NICU, and encourages parents to read to their preemies.