About Us

Deb Discenza gave birth to her daughter at 30 weeks gestation in 2003. From day one she was thrust into advocating and never looked back.  Whether it was her starting the award-winning Preemie Magazine in 2005 or co-writing The Preemie Parent’s Survival Guide to the NICU and launching PreemieWorld, she saw a huge void in parent education in and out of the NICU especially in underserved communities.  In 2020 she Co-Founded the Alliance for Black NICU Families, a non-profit providing racial and health equity in the form of a free wearable breast pump.  In 2023 she founded and is the Executive Director of PreemieWorld Foundation, Inc., providing equitable access to patient education in the form of like-minded books and long term outcomes data for premature infants into the geriatric years. Also in 2023 she founded and is the Executive Director of the Books for Healing Partnership, Inc. going no where no one else can with patient education in the form of a children’s story to be used in all forms of healthcare.  When not doing all of that, Deb serves or has served on numerous boards and committees including:

• International Neonatal Consortium
• NICHD Neonatal Research Network’ Community Engagement Board
• National Coalition for Infant Health
• NICU Parent Network
• International Children’s Advisory Network
• Kindred 360 
• The Skylar Project

Jenny is a former Children’s Librarian with a Degree in Library Science, a former Executive Assistant within the public safety sector and service agencies and now, Co-founder/VP/Editor-in-Chief of PreemieWorld Foundation, Inc. Jenny is a proud mother of two young boys. Her youngest son, Joshua is a former 26-week micro-preemie who spent 129 days in the NICU. Having traveled the arduous preemie journey, Jenny is incredibly passionate about promoting prematurity awareness, racial & health equity support, as well as encouraging and advocating for other preemie families who are on this journey.

Jenny also enjoys reading and inculcating a love of reading in children. A “rocker chick,” she loves attending rock concerts, live theatre and listening to live music of all genres. She enjoys writing and sharing her journey as a way to encourage others in similar situations. Many have followed her blogs on grief and widowhood on “A Warrior’s Battle” Facebook Page and reading her NICU experiences with her youngest son, Joshua in “The Year of the Dragon” blog posts. Jenny is also a published author through various parenting and special needs parenting magazines.