We are Empowering Preemie Parent Communities Worldwide

 (Non-profit) 16 Days increases outcomes for babies in Level 3 & 4 Neonatal Intensive Care Units (NICU) by giving the gift of time because every moment matters.  

 (Non-profit) A Little Hero provides support, community, and knowledge for parents in the NICU.

(For-Profit) Beyond Preemie offers occupational feeding therapy for preemies throughout their first five years, as well as professional development and wellness consultation. 

  (Business) Caring Essentials offers an extensive trauma-informed educational program. 

 (Non-Profit) Carter G. Cares intends to educate, empower and assist families with children in the NICU and to bring awareness to prematurity and high-risk pregnancy. 

(Non-Profit) COINN seeks to unite nurses who specialize in neonatal care, in order to improve both the field and the patient experience.

 (Non-Profit) C-Path leads collaborations that accelerate drug development, advancing better treatments for people worldwide.

 (Education) The Digital Governess provides early-childhood education resources and various consulting services.

 (Business) Feeding Tube Dependency Institute offers programs to aid families with feeding tube weaning.

 (Non-Profit) Forever Jewelz aims to educate and advocate for NICU families, as well as educating about necrotizing enterocolitis (NEC).

(Initiative) Family Centered Care Taskforce supports NICUs as they seek to begin or strengthen Family-Centered Care in their units, and advocates for the adoption of this care approach.

(Non-Profit) The Gracelynn Hope Foundation provides community and aid for parents in the NICU, and grief support for families who have lost an infant.

 (Non-Profit) The Gift of Life offers hope, encouragement, care packages, and support to the parents of premature babies in the neonatal intensive care unit. 

 (Non-Profit) Hope for HIE seeks to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, advocacy, education, research and support. 

(Non-Profit) Houston's Lift Off provides local support for NICU families in Stark County, Ohio.

(Non-Profit) In His Hands provides spiritual and physical comfort to NICU families and babies.

(Forum) A preemie parent support group started by Deb Discenza in 2005, the Inspire Preemie Community has grown to be the largest discussion forum globally around prematurity in and out of the NICU.  

 (Non-Profit) The International Vanishing Twin Syndrome Foundation (IVTSF) is a parent- and provider-led 501(c)(3) nonprofit based in the United States, dedicated to advancing research, education, and support for individuals and families affected by vanishing twin syndrome (VTS).  

(Business) It's a NICU World seeks to ensure that no NICU parent feels isolated, offering books and resources to support families through their journey.

(Publication) The Journal of Health Design (JHD) is a peer-reviewed scientific publication, especially interested in measures that do not require major Health Policy change. 

 (Resource) Hope for Henry provides child-centered resources that empower children and families to navigate the healthcare system.

 (Business) Keriton provides a feeding management platform which supports safe practices and promotes family engagement.

(Business) Key to CP provides an in-depth, comprehensive assessment of the client’s function and development, followed by best-practice interventions, a detailed discussion of the client’s goals, and any concerns the client or client's parents or caregivers 

may have.

(Non-Profit) Kindred 360’s mission is to develop, create and promote policies and procedures that overcome historic racism and put an end to the Black maternal and child health crisis, while also offering culturally relevant and informed supportive services and tools that provide a complete circle of care, enabling Black families to thrive. 

 (Education) Knowledge Is Now provides further education for healthcare professionals. Knowledge Is Now offers high-quality, accessible online education, focused on medical necessity and clinical excellence, as well as personal and leadership growth.  

(Business) Lansinoh provides goods aimed especially at mothers struggling through pregnancy, postpartum, and early childhood- as well as resources for healthcare professionals.

(Non-Profit) Mama Tulia Ministries aids Ugandan preemie families through hospital and home visits, spiritual aid, preemie kits, and much more.

 (Business) Mattie's Memory seeks to help families who have experienced the loss of a child during pregnancy and infancy by providing resources and memory items for families.

(Initiative) Melinated Moms supports mothers and women of color by helping them connect to each other, and by providing programs, events, and resources.

(Film) 'Little Man' is the story of how a micro-preemie brought a family to its knees. Throughout his struggle for life, so struggle filmmaker, Nicole Conn and political activist Gwen Baba to keep their family from disintegrating under the unrelenting stress and chaos of hospitals, emergency medical crisis and a crushing blow to trust.

Nicole is co-author to The Preemie Parent's Survival Guide to the NICU with PreemieWorld Foundation, Inc.'s Deb Discenza.

(Non-Profit) Nicu Alumni provides families with essential information and resources so that they thrive well beyond the transition from the NICU, supporting them and connecting them with communities and medical professionals.

(Initiative) NICU Parent Network is a US-based professional organization of NICU Parent Leaders, collectively representing the needs and best interests of NICU families.  

(Publication) Parenting Special Needs provides online, mobile-friendly articles, videos, and resources for parents of special needs children.

(Business) Perinatal Resource Collaborative seeks to bring together perinatal professionals such as doulas, midwives, and more, better equipping them to further aid patients.

(Non-Profit) The Brazilian Association of Parents, Families, Friends and Caregivers of Premature Babies (ONG Prematuridade.com) is a Brazilian national non-profit organization dedicated to preventing premature birth and guaranteeing the rights of premature babies and their families. 

(Non-Profit) S.A.B.R.E.E. Enrichment Academy seeks to empower historically disadvantaged youth and families by providing trauma-informed, equity-centered educational support, mentorship, and holistic development programs.

 (Business) The NICU Dad advocates for the unique experiences and challenges faced by NICU dads, while providing comprehensive support and resources for both NICU families and the dedicated professionals who care for them.

 (Non-Profit) The Skylar Project's mission is to provide resources for NICU, PICU, and bereaved families, offering financial assistance, care packages, mental health advocacy and support. 

(Education) The National Initiative for Trauma Education and Workforce Development provides training to mental and behavioral health service providers and social work educators to close the knowledge gap in the provision of effective services to clients who are affected by trauma.

 (Non-Profit) Warrior Family Books For NICU donates baby books & gift cards to the families staying in the NICU's & Specialty Care Units throughout New England.