We are Empowering Preemie Parent Communities Worldwide

The Alliance for Black NICU Families™ seeks to raise the voice of black families in the NICU and post-NICU in terms of creating racial and health equity through policy advocacy, professional educational initiatives, family educational initiatives, and public outreach for assistance. 

 Promoting positive feeding and developmental outcomes for premature infants, NICU graduates, and newborns throughout the first five years. 

Unifying Neonatal Nurses Globally.

• Excellence in newborn care through evidence, research and education of Neonatal Nurses.
• Advocacy of high quality newborn care.
• Respect for diversity by integrating cultural norms and values among health care of newborns and there families.

Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities.  It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. 

 C-Path leads collaborations that accelerate drug development, advancing better treatments for people worldwide 

 Transforming education through personalized learning. 

 Supporting NICUs as they seek to begin or strengthen Family-Centered Care in their units. 

 The Gift of Life offers hope, encouragement, and support to the parents of premature babies in the neonatal intensive care unit. 

 Improving the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, advocacy, education, research and support. 

 Our mission is serving families with a sick baby in the NICU. There is no resources in our county. We are focused on providing a place for families to rest while traveling to see their sick baby in the NICU. 

Providing spiritual and physical comfort to NICU families and babies 

Preemie parent support group started by Deb Discenza in 2005, the Inspire Preemie Community has grown to be the largest discussion forum globally around prematurity in and out of the NICU.  

 Our mission is to ensure that no NICU parent feels isolated, offering a  platform for shared stories, support, and celebration of our children's monumental  battles. It's a NICU World is dedicated to transforming the NICU experience into  one of empowerment and community. 

 The Journal of Health Design (JHD) is a peer-reviewed scientific publication. We aim to publish papers describing the development and evaluation of innovations to improve the patient experience of health care.  We are especially interested in measures that do not require major Health Policy change. 

 Hope for Henry transforms the pediatric patient experience by providing innovative, child-centered resources that empower children and families to navigate the healthcare system. Since 2003, Hope for Henry has served over 150,000 children at hospitals nationwide. 

 To provide an innovative platform that supports safe feeding practices and promotes family engagement 

Key to CP provides an in-depth, comprehensive assessment of the client’s function and development, followed by best-practice interventions, a detailed discussion of the client’s goals, and any concerns the client or client's parents or caregivers 

may have.

 Kindred 360’s mission is to develop, create and promote policies and procedures that overcome historic racism and bring about the end of the Black maternal and child health crisis, while also offering culturally relevant and informed supportive services that provide a complete circle of care enabling Black families to thrive. 

 Knowledge Is Now adds value for individuals, organizations, and communities. At Knowledge Is Now, we are committed to enhancing the skills and knowledge of professionals in the field of pediatric therapy through Continuing Education offerings and Consulting Services. We provide high-quality, accessible online education, focused on medical necessity and clinical excellence, as well as personal and leadership growth. 

We believe when mothers thrive, we all thrive.  While new life can bring joy and anticipation, it’s a journey that can take a toll — physically, mentally, emotionally, and beyond. Through the joy and hope of it all, the doubt, the sleepless nights, and every moment in between, we want you to know…we see you. We’re fighting for you. We’re your ally on the journey — every step along the way.  

 Matties memory mission is to help families who have experienced the loss of a child during pregnancy and infancy by providing resources and memory items for families.  

 The mission of Melinated Moms is to build a bridge of support that inspires, motivates and cultivates our members to be better versions of themselves. 

'Little Man' is the story of how a micro-preemie brought a family to its knees. Throughout his struggle for life, so struggle filmmaker, Nicole Conn and political activist Gwen Baba to keep their family from disintegrating under the unrelenting stress and chaos of hospitals, emergency medical crisis and a crushing blow to trust.

Nicole is co-author to The Preemie Parent's Survival Guide to the NICU with PreemieWorld Foundation, Inc.'s Deb Discenza.

 We are dedicated to supporting and connecting families, medical professionals, and communities as they navigate life after the NICU (Neonatal ICU). We provide families with essential information and resources so that they thrive well beyond the transition from the NICU, celebrating every milestone with them along the way. 

NICU Parent Network is the premier US-based professional organization of NICU Parent Leaders who collectively represent the needs and best interests of NICU families.  

Together, we envision a world where every NICU family is an essential and integral member of their baby's care team.

 We are the FIRST, FREE, INTERACTIVE, MULTI-MEDIA online, mobile-friendly publication serving the special needs community. With Parenting Special Needs Magazine, you can:

• LISTEN to the articles
• READ the text and tips
• WATCH the online videos
• CONNECT with the direct links
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In other words – we are here – how, where, and when you need us.

 The Village for the Villagers  

The Brazilian Association of Parents, Families, Friends and Caregivers of Premature Babies (ONG Prematuridade.com) was born from the experience of parents and health professionals with prematurity and its consequences, in November 2014. We are the only national non-profit organization dedicated preventing premature birth and guaranteeing the rights of premature babies and their families. 

 At S.A.B.R.E.E. Enrichment Academy, our mission is to empower historically disadvantaged youth and families by providing trauma-informed, equity-centered educational support, mentorship, and holistic development programs that begin before the classroom and extend far beyond it. 

  The Skylar Project's mission is to provide resources for NICU, PICU, and bereaved families, offering financial assistance, care packages, mental health advocacy and support. 

 The National Initiative for Trauma Education and Workforce Development’s (the Initiative) aims to provide training to mental and behavioral health service providers and social work educators to close the knowledge gap in the provision of effective services to clients who are affected by trauma.  The Initiative supports the development of trauma-informed practitioners who understand that trauma occurs within a broad context that includes individuals’ personal characteristics, life experiences, and current circumstances. 

 Our son Anthony was born premature at 24.5 weeks May 7th, 2020. We stayed in the NICU for 4 months. Reading helped us bond with Anthony when we couldn’t hold him. To give back we donate baby books & gift cards to the families staying in the NICU's & Specialty Care Units throughout New England. We want to help families during a difficult time in their life.